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A drug company abandoned a treatment for  ‘bubble boy disease.’ After a 5-year fight, this little California girl is about to get it

Published Fri, 27 Dec 2024 06:23:40 GMT

By Elizabeth Cohen and Lauren Mascarenhas | CNNLater this spring, a little girl in California who essentially has no immune system will receive a lifesaving treatment for “bubble boy disease” thanks to the persistence of a dogged group of parents, a pediatrician, a veteran newsman and a few episodes of “Grey’s Anatomy.”Five-year-old Seersha Sulack has the same rare disease portrayed in the 1976 John Travolta movie, “The Boy in the Plastic Bubble.” A germ — even a common cold — could kill her, and so she stays away from anyone outside her immediate family.The treatment she’s been waiting for had stunning, near-perfect results in a clinical trial, but it’s been sitting on the shelf for years in the US because the pharmaceutical company that once owned the license abandoned it when it decided not to not to pursue approval from the US Food and Drug Administration.“It’s a pretty tough situation,” said Dr....

Google moves into two big San Jose buildings within huge tech campus

Published Fri, 27 Dec 2024 06:23:40 GMT

A sign in a tech complex that Google has named its Brokaw Campus, located on Brokaw Road between North First Street and Bering Drive in north San Jose. (George Avalos/Bay Area News Group)SAN JOSE — Google has moved into two San Jose buildings that are part of a huge tech campus where the search giant could eventually employ thousands if it fills all the buildings it has leased at that site.The buildings are among four office sites that Google has leased along East Brokaw Road between North First Street and Bering Drive in north San Jose.Google’s official expansion at the north San Jose tech campus, which is owned by legendary real estate firm Peery Arrillaga, arrives at a time when uncertainty has arisen over the precise pace of Google’s proposed transit-oriented neighborhood in downtown San Jose.In 2019, Google leased four north San Jose buildings totaling a combined 729,000 square feet from Peery Arrillaga. The buildings weren’t constructed at the time...

Foundation 3D prints prosthesis, gives them free in Uruguay

Published Fri, 27 Dec 2024 06:23:40 GMT

MONTEVIDEO, Uruguay (AP) — The first thing 11-year-old Mia Rodríguez says she did with her new prosthetic hands was draw a picture of a kitten.The Uruguayan girl, whose fingers never fully developed, put on the prosthetic hands and demonstrated the grasping movement she can now make.“Now I can hold the pencil with one hand. Before, I had to do it with both hands because my fist wouldn’t close,” she said, while her mother Ana Van López watched excitedly.Rodríguez received the protheses from the Uruguayan Manos de Héroes foundation, which designs and prints hands and arms with 3D technology for children and adults across the South American country. Since 2020, the foundation has provided more than 100 free prostheses, most of them for families in vulnerable situations. Van López, 28, lives with her partner and their four children in an abandoned factory in Salinas, about 40 kilometers (25 miles) from Montevideo, and her income comes from informal work, such as selling firewood or pine...

Kansas legislators impose sweeping anti-trans bathroom law

Published Fri, 27 Dec 2024 06:23:40 GMT

TOPEKA, Kan. (AP) — Republican legislators in Kansas enacted possibly the most sweeping transgender bathroom law in the U.S. on Thursday, overriding the Democratic governor’s veto of the measure without having a clear idea of how their new law will be enforced.The vote in the House was 84-40, giving supporters exactly the two-thirds majority they needed to override Gov. Laura Kelly’s action. The vote in the Senate on Wednesday was 28-12, and the new law will take effect July 1. Seven other states have enacted laws preventing transgender people from using the restrooms associated with their gender identities, but most of them apply to schools. The Kansas law applies also to locker rooms, prisons, domestic violence shelters and rape crisis centers. The Kansas law is different than other states’ laws in that it legally defines male and female based on a person’s reproductive anatomy at birth and declares that “distinctions between the sexes” in bathrooms and oth...

GOP-controlled Kansas Legislature overrides Democratic governor’s veto to enact sweeping anti-transgender bathroom bill.

Published Fri, 27 Dec 2024 06:23:40 GMT

TOPEKA, Kan. (AP) — GOP-controlled Kansas Legislature overrides Democratic governor’s veto to enact sweeping anti-transgender bathroom bill.Source

Former Pirates great Dick Groat, a 2-sport star, dies at 92

Published Fri, 27 Dec 2024 06:23:40 GMT

PITTSBURGH (AP) — Dick Groat, a two-sport star who went from All-American guard in basketball to a brief stint in the NBA to ultimately an All-Star shortstop and the 1960 National League MVP while playing baseball for his hometown Pittsburgh Pirates, has died. He was 92.Groat’s family said in a statement that he died Thursday at UMPC Presbyterian Hospital in Pittsburgh due to complications from a stroke.Groat, who was from the Swissvale neighborhood just east of Pittsburgh’s downtown, starred at Duke in basketball and baseball in the early 1950s, earning All-American honors in both. His No. 10 jersey hangs inside Cameron Indoor Stadium after the program retired his number following the end of his senior season in 1952.Groat attempted to play both baseball and basketball professionally, signing with the Pirates and being drafted by the Fort Wayne Pistons of the then-fledgling NBA within weeks of each other in 1952.While Groat said basketball was his first love, a stint in...

Jerry Springer, the onetime mayor whose namesake TV show unleashed chaos on weekday afternoons, has died at 79

Published Fri, 27 Dec 2024 06:23:40 GMT

CHICAGO (AP) — Jerry Springer, the onetime mayor whose namesake TV show unleashed chaos on weekday afternoons, has died at 79.Source

Employees at American Elm restaurant killed by gunshots

Published Fri, 27 Dec 2024 06:23:40 GMT

DENVER (KDVR) — After two people were found dead inside the American Elm restaurant over the weekend, the office of the medical examiner has released the cause of death.Emerall Vaughn-Dahler and Ignacio Gutierrez Morales were killed in a shooting inside the restaurant located on the corner of 38th Avenue and Raleigh Street in the West Highlands.On Thursday, the Denver Office of the Medical Examiner confirmed Vaughn-Dahler was killed as the result of multiple gunshot wounds and her death was ruled a homicide. Man charged with murder after Denver bartender found dead under tarp FOX31 was told by Vaughn-Dahler’s husband she was the general manager of the restaurant and has a 12-year-old child.Gutierrez Morales was killed as a result of a gunshot wound and his death was ruled a homicide.Police are still working to gather information on what happened inside the restaurant and what led to the shooting. At this time no suspect information has been released. A GoFundMe has been set up to ...

Gold nugget over 11 pounds found in Colorado 136 years ago

Published Fri, 27 Dec 2024 06:23:40 GMT

DENVER (KDVR) -- With shows like "Gold Rush", "Parker's Trail", "Bering Sea Gold", and "Yukon Gold" growing in popularity over the years, learning the history of gold mining in Colorado is of high interest to many.In 1887, miners Tom Groves and Harry Lytton found the largest gold nugget in Colorado history. The nugget was located near Breckenridge around an area called Farncomb Hill. 8 iconic restaurants only found in Colorado Tom's BabyWhile there are many contradicting stories on how much the gold nugget actually weighed, it was over 11 pounds, according to the Town of Breckenridge.The nugget became known as Tom's Baby."It weighed more than 11 and 1/3 pounds and was named Tom’s Baby because Groves swaddled the nugget in a blanket like a baby and made his way to Main Street where the proud 'father' showed his prize to all. Tom's Baby remains today the largest gold nugget ever found in Colorado," the Town of Breckenridge explained when Prospector Park opened in 2015.There is a bro...

School bus with 20 kids involved in crash with tanker

Published Fri, 27 Dec 2024 06:23:40 GMT

WELD COUNTY, Colo. (KDVR) -- The Colorado State Patrol is investigating a crash that involved a school bus and a tanker carrying oil on Thursday.The crash was reported around 7:25 a.m. near Highway 52 and Weld County Road 65.CSP said there were 20 kids on the school bus at the time of the crash, but none of them were injured. Rock-throwing suspect ‘had stupid ideas,’ says teen who knows him The driver of the tanker was injured and was flown to the hospital on a medical helicopter.The tanker was carrying oil and a small leak was reported.CSP did not say which school the bus was from. The cause of the crash is under investigation.